Sister For Sight
» After Ava was born and we found out she was completely deaf, we were really sad about it, probably for about two days, before something clicked. This is what we’ve been given. I just jumped into research and enrolled myself in a sign language class. That was our main form of communication for her first year. She was a really happy baby.
» There are days that I feel overwhelmed about what their future could be like, and scared for them, and sad for them. I thought deafness was the end of the world when we first found out. Usher Syndrome was a curve ball I was not expecting. I think, Oh my gosh, my sweet girls. For them to go blind…. We don’t know when it’s going to happen. Some people lose their sight faster, some slower.
» Sisters for Sight is therapeutic. It’s a way for me to feel like I’m doing something proactive. Right now I just have to slowly prepare them. They don’t know the scary side of everything. We deal with things as they come up, as it’s appropriate for their age.
» The girls have had eight surgeries between them. A woman who has cochlear implants gave me really good advice. She told me to have a lot of patience. It’s exhausting when you’re first learning to hear, just from the amount you have to concentrate. Nowadays, I even forget that they have them on. The girls are completely deaf, but their speech is excellent.
» The girls adore Nick. We found love again. They call him their “Earth Daddy.” When he came into the picture, I saw such a difference in Ava, who was having a really hard time. It was like a weight was lifted off her shoulders. I just really saw her coming back to life.
» You never know the strength you have until you have no other options left. Such is life. Everyone has a story.